I’ve had such a great time as the Co-Chair of the 2011 DC Walk for Lupus Now! One of my most important goals was to raise awareness of the disease in the DC Metro area. Today I am featured in the Washington Informer on page 17. Click on the picture below to read the advertorial. I think it’s fabulous (if I do say so myself)!
Katina Rae Stapleton
"Living with Lupus", The Washington Informer, April 14-20,2011 Edition, pg. 17
Posted in Fabulous, Fibromyalgia, In the Press, Lupus, Walk for Lupus Now
Tagged childhood lupus, family, Fibromyalgia, high school, hope, Life Coaching, Lupus, Lupus Foundation of America, Lupus Foundation of America DMV, Sigma Gamma Rho Sorority, Sororities, Walk for Lupus Now
One of the great things about the internet is that it allows people with lupus to locate others who share the disease and learn from them. One of my favorite inspiration-blogs is written by Juliana Joie, a lupus and fibromyalgia survivor that embraces life to the fullest and is actively working to share her blessings with others.
This afternoon I checked my email and spotted Juliana’s monthly newsletter. She included a powerful message about making the rest of 2010 fabulous:
“It is a wonderful time to seek clarity inside yourself and choose which goals are the juiciest, richest, and most powerful for you! Remember that saying “No” to some things can mean a great big “YES” to other things!
- As you reflect on 2010, what accomplishments do you want to savor?
- What will fulfill your heart’s deepest longing?
- How will you create the life you love with these precious 12 weeks?”
It was a very timely message for me because I just decided that my end of the year goals are to relax and have a good time. I’ve even adopted a theme song. For the next three months I’m going to live my life like it’s Golden . . .
I’m taking my own freedom
Putting it in my song,
Singing loud and strong,
Grooving all day long,
I’m taking my freedom,
Putting it in my stroll,
I’ll be high-steppin’ y’all,
Letting the joy unfold.
Golden, by Jill Scott
The Butterfly Lesson: Life is too precious to waste. But it is a mistake to believe that you must always be doing something “serious” with your time. Sometimes inaction (rest, relaxation, a deep tissue massage!) is what you need. Other times you should slip on a pair of your favorite shoes and dance, curl up with the television, read a good book, spend time with your friends and family, or anything else that brings you joy.
“So write yourself a permission slip to be a little selfish. Insist you take care of your health so that you can be around to yell at your kids when they are older.” Sherri Shepherd
Today I felt terrible. In the past I might have tried to “push through the pain” or would have felt guilty about taking the time I needed to feel better. Both of those things seemed like counter-productive ideas this morning, so I decided to rest and not feel guilty about it. I gave myself a “permission slip,” something that people with chronic illnesses often forget to do because we are worried about letting other people down (or letting ourselves down).
The “permission slip” idea came from one of my favorite books: Permission Slips: Every Woman’s Guide to Giving Herself a Break by Sherri Shepherd.
Have you given yourself a break today?
If you don’t have it, run to your library or bookstore to get a copy. The book tells the story of Sherri’s own personal journey with diabetes and it’s wonderful guide to not feeling guilty about the day-to-day decisions you make that guide your life. It reminds me of some great advice from life coach Christopher Dachi: If you are feeling sick (in physical pain, tired, depressed, lonely, etc.) that is bad enough by itself, don’t suffer twice by adding guilt to the equation.
The Butterfly Lesson: If you are having a hard day with lupus (or any other health issue), give yourself permission to do what you need to do feel better. For me today that involved the couch and some quality nap time. Thanks Sherri!
Katina Rae Stapleton
P.S. Saturday is my final day blogging for National Invisible Chronic Illness Awareness Week (September 13-19, 2010) started in 2002 by Lisa Copen. Make sure you go to the website to catch up on great posts and other content (including a free 80-page ebook on living with an invisible illness.)